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by Brendan Borrell / 20 September 2017 16 Comments The fact is that vaccines save lives; they don't cause autism. It also supports the Toddler Treatment Network, which develops new interventions for infants and toddlers. From 1997 to 2006, their advocacy in the areas of treatment and environmental factors shifted research priorities in the U.S. from basic research to translational and clinical research, with less emphasis on the underlying biology and greater emphasis on putting what was known to practical use. [75], Autism Coalition for Research and Education. Autism Speaks's former president Mark Roithmayr had a salary of $436,314 in 2012, and Chief Science Officer Geraldine Dawson earned $465,671. [29], Autism Speaks supports the Clinical Trials Network, which focuses on new pharmacological treatments. [76], In 2016, Autism Speaks spent $2,375,591 on officers, directors, trustees, and key employees, including $110,000 of bonus and incentive compensation. "[51], In January 2008, an autistic blogger, upset with the portrayal of autism at Autism Speaks's website, "Getting the Word Out",[52] created a critical parody website titled "Getting the Truth Out". Autism Speaks, a leading autism advocacy group in the U.S., has quietly made a small but potentially meaningful change to its focus: According to a new mission statement, it will no longer be seeking a “cure” for autism spectrum disorder. Every child or adult with autism has unique strengths and challenges, so there is no one size fits all approach to autism treatment and intervention. Advocacy groups that focus primarily on medical research include Autism Speaks, the Autism Science Foundation, and its predecessor organizations, the Autism Coalition for Research and Education, the National Alliance for Autism Research, and Cure Autism Now, and the former Autism Research Institute. [60], Eric London, a founding member of the Autism Science Foundation's Scientific Advisory Board, resigned from Autism Speaks' Scientific Affairs Committee in June 2009, saying that arguments that "there might be rare cases of 'biologically-plausible' vaccine involvement...are misleading and disingenuous," and that Autism Speaks was "adversely impacting" autism research. However, she deeply regretted phrasing her concerns in that manner. [23], Autism Speaks is an autism organization that, along with its predecessor organizations, has been a source of funding for research into the causes and treatment of autism spectrum disorders; it also conducts awareness and outreach activities aimed at families, governments and the public. Singer also claimed that she reconciled with autism advocates to some extent, but still advocates for medical research on autism. NAAR also published the NAARRATIVE, a newsletter on autism biomedical research. They dropped the word “cure.”. as a mascot. A person’s treatment plan can include behavioral interventions, other therapies, medicines or a combination of these. Autism Coalition for Research and Education. [9], Autism Speaks has been the focus of controversy; over 60 disability rights organizations have condemned the organization for failing to represent autistic people, and for exploitative practices. ATN/AIR-P Autism and Medication: Safe and Careful Use. He worked for support from Autism Speaks on 2008, and 2009. [70][71][72] Autistic author John Elder Robison said that Wright's op-ed "articulates a view of the 'autism situation' that is very different from my own. In December 2014, the pair announced a launch that will allow worldwide access the research for further collaboration and genome analysis. [59] Autism Speaks' founder Bob Wright called Singer's resignation "disappointing and sad", and that it is possible that autism is caused by vaccines, though this claim is scientifically inaccurate and has been rejected by all reputable medical organizations. Autism Speaks Inc. (AS) is the largest autism advocacy organization in the United States. [26], Autism Speaks believes that vaccines have been shown to be safe for most children, and are important for preventing serious diseases such as measles and mumps. [49] In 1997, CAN established the Autism Genetic Resource Exchange; CAN was successful in establishing AGRE despite an initially negative reaction from scientists who were concerned whether CAN could carry out rigorous work, and despite what CAN considered to be scientists' reluctance to share their data. This sort of research is problematic because it is part of seeking a cure for autism and can be interpreted as an attempt at eugenics. “However, similar to many experiences of parents of children with autism, the organization grew to believe that autism is something to be worked with for promoting fulfilling and productive lives of people on the spectrum — rather than something that has to be done to.” Shortly before publication, Silberman wrote a scathing op-ed piece for the Los Angeles Times criticizing Autism Speaks for doing research on genetics and a cure for autism, rather than a vague thing he called ‘quality of life research’. Autism Speaks seeks a cure for autism. Our ATN/AIR-P Medication Decision Aid and ATN/AIR-P Autism and Medication: Safe and Careful Use guide can help you to: Our Autism Response Team (ART) is specially trained to connect people with autism, their families, and caretakers to information, tools, and resources. With narration closely resembling the 1954 short Taming the Crippler, which personified polio as a kind of grim reaper figure, I Am Autism has been criticized by autism advocates and researchers for its negative portrayal of autism. [50], Autism Speaks's advocacy has been based on the mainstream medical view of autism as a disease: "This disease has taken our children away. [4], In 2005, Autism Speaks merged with the Autism Coalition for Research and Education. Other major programs included the "High-Risk Baby Sibling Autism Research Project," and the "NAAR Genome Project." [19], On May 1, 2015, Bob Wright resigned as chairman of the organization. "[58], Singer said that numerous scientific studies have disproved the link first suggested more than a decade ago and that Autism Speaks needs to "move on". Science program, awareness, family services, advocacy. Since then, countless landmarks and organizations worldwide have joined the movement later named Light it Up Blue by Autism Speaks", "White House Says No To Autism Speaks Effort", "White House will Light It Up Blue for World Autism Awareness Day", "National Alliance for Autism Research: committed to accelerating biomedical autism research to unlock the mysteries of autism spectrum disorders", "A psychiatrist's journey from parent to founder of research advocacy organization", Autism Society of America : Getting the Word Out, "Autism Science Foundation launches operations: new advocacy group will focus on non-vaccine-related autism research", "Autism: the art of compassionate living", "Autism Speaks to Washington - A Call for Action", "ASAN-AAC Statement on Autism Speaks' DC "Policy Summit, "Top Earner At Autism Speaks Paid More Than $600,000", "Understanding the puzzle of Autism Speaks", Association for Science in Autism Treatment, Simons Foundation Autism Research Initiative, Maia Chung Autism and Disabilities Foundation (Jamaica), The Accidental Teacher: Life Lessons from My Silent Son, Aspergirls: Empowering Females with Asperger's Syndrome, Freaks, Geeks, and Asperger Syndrome: A User Guide to Adolescence, The Curious Incident of the Dog in the Night-Time, Everybody Is Different: A Book for Young People Who Have Brothers or Sisters With Autism, Journal of Autism and Developmental Disorders, Pervasive developmental disorder not otherwise specified, https://en.wikipedia.org/w/index.php?title=Autism_Speaks&oldid=1000664000, Autism-related organizations in the United States, Mental health organizations in New York (state), Articles with dead external links from May 2017, Articles with permanently dead external links, Short description is different from Wikidata, Wikipedia pending changes protected pages, Wikipedia pages semi-protected against vandalism, Articles lacking reliable references from March 2011, Creative Commons Attribution-ShareAlike License. [34] Autism Speaks staff member Alison Singer was reportedly criticized for a scene in which she said, in the presence of her autistic daughter, that when faced with having to place the girl in a school that she deemed to be terrible, she contemplated driving her car off a bridge with her child in the car. Wow! According to the group's financial documents, four percent of the budget goes to family services. 4. [68], In November 2013, Autism Speaks published an op-ed by co-founder Suzanne Wright. Neurodiversity paradigm [16], Autism Speaks formerly assigned a high priority to research into the now-discredited claim that immunization is associated with an increased risk of autism. Autism Speaks, through a series of mergers, has combined organizations that funded peer reviewed research into genetic causes, championed alternative theories and therapies, and advocated for individuals with autism. Autism Speaks is a great example of this dilemma. 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